what is not true. but might be true
Well things have slowed down in preparation for the move, art exhibition, and fundraiser. Yesterday while I was playing with Morgan on the Total Gym she began to speak of nerve pain. This is all my interpretation of our dialogue. She began by saying how she could see how it might deter people from moving. She said creating movement was not comfortable. The hightened sensation of energy was more powerful when she was moving. As we did several different types of squats each one changed where she felt the sensations. She tried to break it down for me who has no long term chronic experience with pain such as this. “It is like standing on your foot when it falls asleep.” I could picture that as I have done that before, but only for small amounts of time. She went on saying that is how she knows she is alive. The thing I have never quite wrapped my head around is why does it feel more when moving? Also how do you know it is pain? (I do not mean to be insensitive, I just am asking a question) I will use creative license here, meaning I will take words that have come into me and create something else with them to use as an example. Lets say person A gets a spinal cord injury and is cut off from their body. All files they had created over their life span are no longer valid. All reference points are gone. How can someone interprete anything new. The brain works like a computer, it pulls files of words, sensations, or experiences and compares them to what it has in memory. So now there are no files to use as reference points. I will inject my interpretation of Razelle’s words now. She was saying how in the hospital her right leg was considered completely paralysed. She began to get sensation back, tingling, pins and needles. She was very excited she believed that this meant the leg was coming alive. When she spoke to the doctors to tell them the great news, they responded by saying that is nerve pain and just let us know when you need pain medicine. So in her world all of a sudden she had been given a reference point. That is not the leg coming alive it is nerve pain, and you will want pain medicine. Just let us know when you are ready. So now it is set up that the sensations are bad. This is the only reference point. So every time the person might feel that sensation it is reinforced as pain, here take some drugs to get rid of it. You do not want it. March forward through the timeline and you have days/ months/ years of that one reference point being solidified, and then a million different micro experiences coming away from that point saying I do not want that. I wish I did not have that pain. It is no wonder people suffer so much with the pain. I am creating all of this for use as an example, I know it is not real. It might be though. So back to Razelle, I spent an amazing month with her. I heard her say a million times “my phantom pain” and point to her right leg. Almost every time I would ask “phantom?” I did not understand, how could I? She said yes it should not be in the leg it should be in her back. She would then point to her back. I watched her as she would resist it being in her leg, from the programming early on, and try to put it in her back. I asked her if her back hurt and she said yes, definately. NO wonder. She was taking what should be in her leg, resisting it-which gives it strength and shoving it in her back.
Romi just woke up so I must interrupt my creative thoughts until I can find more time.
I was in wonder of what I had been seeing with Razelle, she was resisting what was and creating something new instead of excepting what was. I told her many clients who I had worked with over the years where pain had turned to movement. I told her about 2 clients where pain began in the quads and as it went away controlled movement came. Then the pain went into the hamstrings, then it went away and coordinated movement came. Then the calves then the shins. Each time the pain would be huge then it would go away and movement would come. It was so very clear with these 2 particular clients. So I threw out to Razelle what if it is not pain but immature nervous system pathways getting a confused signal. I was not trying and am not trying to minimalize what anyone is feeling. I am just asking a question. So is it not possible that with focus or movement the signal increases, thus the sensory return increases? Can we change the perspective just a bit to see something in a new light. One that empowers us, one that helps us grow. Instead of running (so to speak) away from what is we go at it. In return for our courage to go at something instead of going away from it we have the opportunity to grow. This takes an unbelievable amount of faith and trust in ones self. I have been blessed by being able to play with some amazing people who have said that the pain helps them focus and find areas better and create movement with. The courage and bravery of these clients is inspiring and amazing. To go at pain on a chronic basis takes so much strength of character. When Razelle altered her perception of the pain it changed, not went away but mellowed. The pain in her back also went down signifigantly when she stopped putting her leg pain in her back. Amazing, just like that. Reality changed forever with a different perspective. Beautiful. The mind can be amazing tool, if we know how it works. How can we use it more efficiently to support us in creating our lives? How can we go from victim to master?
Hum more questions than answers. Typical with me.
